EB and Me...
ITV London News visited Greenshaw last week to interview Fazeel in Year 7.
My name is Fazeel and I’m a Year 7 student at Greenshaw High School.
Recently, ITV came to our school to film me doing a presentation to my Year 7 tutor group (which I have also done in primary school). The experience was phenomenal, not just for me, but for our tutor group and all the teachers who were there. My presentation was on a serious, rare skin condition I have called EB (Epidermolysis Bullosa) or butterfly skin. It’s called butterfly skin because our skin is as fragile as a butterfly’s wings.
EB is a group of genetic skin conditions which cause the skin to blister and tear at the slightest touch. There are three types of EB: Simplex EB; Recessive Dystrophic EB (which is what I have); and Junctional EB.
EB affects my life in many ways, for example, every day I have to go through two to four hours of dressing changes as I have dressings all over my body, but I don’t let that stop me doing the things I want to do in my life. I have to take regular medicines and pain relief because I am constantly in pain.
I want to tell all of you this because even though I’m going through this every day, I don’t let it stop me from accomplishing everything I want to do, including having over 90% attendance. If I can do, it I’m sure all the kids can. And if anyone wants to find out more about EB, you can go to Debra’s website (who are a charity for people with EB) and you can also check out the programme made about me called Paul O’Grady’s Little Heroes - episode 3 on YouTube - and the news segment on YouTube called ‘Boy with fragile skin spends spare time motivating others’ on ITV London News.